Hello Fellow Family Members and descendants of Soren Lind Petersen of Denmark and later Huntsville Utah USA. I have been searching through old papers collected by my in-laws and have come across another mention of the genetic nerve disease that exists in our family. As I wrote in an earlier post a few years ago, it would have been VERY helpful to us to know of its existence. When our six year old daughter started exhibiting signs of the disease it took us several tests and over a year before we learned what it was and how to properly help her. Because of this it has been very important to me to find lateral family lines that may also have this disease in their family and not yet know in case the knowledge of it can help at some point. I am not sure if the disease follows the Renstrom line back to Sweden or the Petersen line back to Denmark. A note made by an unnamed family member leads me toward the Petersen line. I want to reach out to any descendants of these individuals:
Caroline Petersen and Andrew P. Renstrom
Emma Louisa Petersen and Charles William Wright
Soren Lind Petersen Jr. and Margaret Isabelle Dallimore
Adam Lind Petersen and Anna Matilda Peterson
Katy Lofgreen b. 1842 in Sweden
Josephine Petersen (Harris) b 1869
David Petersen b 1975
Hyrum Petersen b 1883
Maren Lovise or Louisa Pedersen (Franck) b. 1839 in Norway I think, died in Huntsville, Utah
Joseph Lind Petersen b 1876
Alma Lind Petersen b 1878
Olga Louisa Petersen (Wilcox) b 1882
Kanute Thomas Petersen b 1885
Ella Petersen (Farr) b 1887
Our family comes through the Caroline Petersen and Andrew Renstrom line. There are several cases in their descendants with this disease. It is called HNPP (Hereditary Neuropathy with liability to Pressure Palsies) but was sometimes diagnosed as CMT (Charcot-Marie-Tooth) until it was learned that this was a seperate disease. If you or a family member are experiencing unexplained neuropathies, frequent numbness and muscle weakness, you may want to look into this. You may also want to read my earlier post for more information on our experience with it. Love from your distant Cousin =)
- Jerusha
http://renstromrecord.blogspot.com/2011/02/hnpp-genetic-condition-to-watch-for.html
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